Tales from the Heart

Episode 96 Gentics, Family History + Communicating

Join "Tales from the Heart" host Lisa Salberg and her guest Dr. Harry Lever as they discuss the April HCMA theme, "Genetics/Family History - Communicating (genetics/FH) with family." We will also cover medical management May!

 

This conversation was recorded April 28, 2023.

Episode 59: A brief history of genetic testing and how we got to clinical testing in HCM with Colleen Caleshu-genetic counselor

In this episode of Tales from the Heart, Lisa Salberg and genetic counselor Colleen Caleshu discuss the history of genetic testing. They talk about the current utility of genetic testing in HCM spectrum disorders today and what tomorrow might bring.

They also have a dialog about the passage of the Genetic Information Nondiscrimination Act (GINA) and what it does for patients.

Episode 57:Medical Management, Managing Symptoms and Medication Side Effects.

In this episode of "Tales from the Heart", Lisa Salberg and her guest Dr. Harry Lever discuss medical management, managing symptoms and medication side effects.

Episode 54: Communicating about Genetics/Family History in HCM with Dr. Steve Ommen

In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss  Genetics/Family History in HCM  and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?

Episode 44: Heart Month and Health Equity with Celina Gorre, CEO of WomanHeart

In this episode of Tales from the Heart WomanHeart CEO Celina Gorre, joins HCMA CEO Lisa Salberg for a discussion about Heart Month and health equity for the HCM community.

Episode 42: Mike Papale: HCM Warrior, Cardiac Arrest Survivor, Author and Advocate.

In this episode of Tales from the Heart, Lisa talks to Mike Papale: HCM warrior,  cardiac arrest survivor, author, and advocate. Mike talks about his book "A Big Heart: A Memoir" which tells the story of his diagnosis with HCM and how it's shaped his life. 

Episode 22: HCMA Founder Lisa Salberg and Dr. Martin Maron discuss atrial fibrillation in HCM

In this episode of Tales from the Heart, Lisa Salber, CEO and Co-host Dr. Martin Maron discuss atrial fibrillation in HCM.  We take a look into some of the unique issues HCM patients and their care team encounter while attempting to manage this common pathway in the HCM journey. Approximately 30% of the HCM population will experience a-fib at some point in their life with HCM. Q&A at the end of the episode. 4hcm.org

Episode 20: Lisa Salberg and Co-host Dr. Harry Lever take a deeper look into medications used in HCM

In this episode of Tales from the Heart, Lisa and Co-host Dr. Harry Lever, Cleveland Clinic.   take a deeper look into medications used in HCM.  Dr. Lever’s sides he used for this segment can be viewed on the HCM YouTube channel

Episode 16: Euan Ashley, MD, PhD Professor of Medicine & Genetics Stanford and HCM Program C0-Director.

In this episode,  Euan Ashley, MD, PhD Professor of Medicine & Genetics Stanford and HCM Program Co-Director discusses his new book, The Genome Odyssey - Medical Mysteries, and the incredible question to solve them. We are also joined by Leilani Graham, who is featured in the book. The ties to HCM are made clear in the podcast! Q&A live at the conclusion of the interview.

Available for preorder https://us.macmillan.com/books/9781250234995

Episode 14: Discussing New HCM Guidelines Part 2- with Dr. Harry Lever and Dr. Martin Maron

In part two of this special episode of Tales From the Heart, Lisa continues to talk about the new HCM guidelines released on 11/20/2020 with Dr. Harry Lever and Dr. Martin Maron. Q and A included.