Tales from the Heart

Episode 92 Reconnecting with Joey Graham on His HCM Journey

Tales from the Heart Podcast Host Lisa Salberg sits down for an initimate conversation with Hypertrophic Cardiomyopathy patient Joey Graham--who lives in Indiana. It's been one year since he was diagnosed with HOCM. Hear directly from Joey in this no holds barred conversation with Lisa.

The conversation took place March 31, 2023

It is Joey's second appearance on the podcast.

Episode 61: Exercise and Balancing work/family/HCM while keeping fit (mentally and physically): With Dr. Steven Ommen

In this episode of Tales from the Heart, Lisa Salberg, and her guest, Dr. Steve Ommen discuss Exercise and Balancing work/family/HCM while keeping fit (mentally and physically).

Episode 60: Balancing work/life balance while staying fit with HCM Warrior Edward Jackson

In this episode of Tales from the Heart, Lisa Salsberg and guest Edward Jackson, HCM warrior discuss his choice to be part of a clinical trial and some of the aspects of his clinical trial experience. They also discuss exercise and balancing work/family/HCM, while keeping fit (mentally and physically). 

Episode 59: A brief history of genetic testing and how we got to clinical testing in HCM with Colleen Caleshu-genetic counselor

In this episode of Tales from the Heart, Lisa Salberg and genetic counselor Colleen Caleshu discuss the history of genetic testing. They talk about the current utility of genetic testing in HCM spectrum disorders today and what tomorrow might bring.

They also have a dialog about the passage of the Genetic Information Nondiscrimination Act (GINA) and what it does for patients.

Episode 58: Balancing work/family/HCM while keeping fit (mentally and physically) with Dr. Martin Maron and Dr. Prem Shekar

In this episode of Tales from the Heart, Lisa Salberg,  Dr. Marty Maron and Dr. Prem Shekar discuss exercise and balancing work/family/HCM while keeping fit (mentally and physically). This episode was broadcasted live from the new Lahey Hospital & Medical Center Hypertrophic Cardiomyopathy (HCM) medical and surgical center.

Episode 57:Medical Management, Managing Symptoms and Medication Side Effects.

In this episode of "Tales from the Heart", Lisa Salberg and her guest Dr. Harry Lever discuss medical management, managing symptoms and medication side effects.

Episode 56: A Review of REDWOOD HCM OLE with Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics

In this episode of Tales From the Heart, Lisa Salsberg has a discussion with representatives:  Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics about REDWOOD HCM OLE. 

Episode 55:Special Edition: Camzios is here!! with Dr Milind Desai

In this special edition episode of Tales from the Heart, host Lisa Salsberg and Dr. Milind Desai of Clevaland discuss the arrival of the new drug Camzyos. Camzyos is the first and only FDA-approved cardiac myosin inhibitor that specifically targets the source of obstructive HCM

Episode 54: Communicating about Genetics/Family History in HCM with Dr. Steve Ommen

In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss  Genetics/Family History in HCM  and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?

Episode 53: The Role of Patient Advocacy for Uncommon Disorders with Dr.Turer

In this episode of Tales from the Heart, Lisa Salsberg and Dr. Turer discuss the role of patient advocacy for uncommon disorders