Tales from the Heart

Episode 47: Why is HCM Awareness so important? - with Dr. Steve Ommen of Mayo Clinic

In this episode of Tales from the Heart, host Lisa Salsberg wraps up Heart Month with a discussion about why HCM Awareness is so important with Dr. Steve Ommen of Mayo Clinic. Dr Steve Ommen leads the HCM program and talk about HCM history and a vision of the future in HCM.

 

ACC Survey Link: Survey link:

https://www.surveys.acc.org/se/0B87B7442D11B879

Imbria Trial: https://www.surveymonkey.com/r/hcmawareness

Celltrion: https://www.surveymonkey.com/r/hcmacelltrion

Please share this story to bring awareness to Heart Month! To learn more about hypertrophic cardiomyopathy (HCM), go to https://www.4hcm.org.#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM

Episode 46: Discussing the HCM act with Billur Dowse: HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee

In this episode of Tales from the Heart, host Lisa Salsberg talks to Heart Billur Dowse, HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee about the role of the committee and the HCM Act. 

Episode 45: Heart Month Discussion: How do we find more HCM families? Why is it important? Why does expert care matter?-with Dr. Martin Maron

In this episode of Tales from the Heart, Lisa and Dr. Maron discuss delay to diagnosis, the right time to go to a COE, the importance of expert care, family screening, how to find HCM families, and more. 
#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM 

 

 

 

Episode 44: Heart Month and Health Equity with Celina Gorre, CEO of WomanHeart

In this episode of Tales from the Heart WomanHeart CEO Celina Gorre, joins HCMA CEO Lisa Salberg for a discussion about Heart Month and health equity for the HCM community.

Episode 42: Mike Papale: HCM Warrior, Cardiac Arrest Survivor, Author and Advocate.

In this episode of Tales from the Heart, Lisa talks to Mike Papale: HCM warrior,  cardiac arrest survivor, author, and advocate. Mike talks about his book "A Big Heart: A Memoir" which tells the story of his diagnosis with HCM and how it's shaped his life. 

Episode 39: Real life with HCM and the connection between our hearts and our emotional wellbeing with Gwen Mayes MMSc, JD HCM patient.

In this episode of Tales from the heart Lisa Salberg, HCMA Founder and CEO, and Gwen Mayes MMSc, JD HCM patient discuss real-life with HCM and the connection between our hearts and our emotional wellbeing. 

Episode 38: Emotional Wellness in HCM Part II with Dr. Harry Lever

In this episode of Tales from the Heart, Lisa and Dr. Harry Lever continue the conversation on emotional wellness in HCM. They discuss history, services, and give some perspective.

Episode 37: Meet the new members of the HCMA Recognized Center of Excellence Family!!

In this episode of Tales from the Heart, Lisa Salsberg speaks to the new members of the HCMA Recognized Center of Excellence family

Episode 36: Emotional wellness in HCM... Finding help and treating the whole YOU!

In this episode of Tales from the Heart, Lisa Salsberg and Dr. Martin Maron discuss emotional wellness in HCM. They give useful  tips on how to find help and get treated. 

Episode 33: The Past, Present and Future of Clinical trials in HCM - with Dr. Martin Maron

In this episode of Tales From the Heart, Lisa Salsberg and Martin Maron discuss the past, present and future of clinical trials in HCM.