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Tales from the Heart is a unique collection of educational, inspirational, and enlightening discussions with the stakeholders in the field of cardiology that come straight from the heart. The guests are patients, physicians, healthcare professionals, industry leaders, state and federal regulators and legislators, journalists, and more. Each story delves into the world of the Hypertrophic Cardiomyopathy Associations network and uncovers the true face of HCM from every angle. Patients will inspire you, medical professionals will educate you, and we may even motivate you to learn more and get involved. In season two Tales welcomes new regular co-host including, Dr. Martin Maron, Dr. Harry Lever, Dr Steve Ommen, Dr. Alex de Feria and more!
Episodes
Friday Nov 06, 2020
Friday Nov 06, 2020
In this episode, Lisa speaks with Robert Blum, President and CEO of Cytokinetics about future therapies for HCM and how industry and advocacy can work together to improve the lives of those with HCM. The current status of Cytokinetics clinical trials in HCM is discussed. Q&A included.
Wednesday Oct 28, 2020
Wednesday Oct 28, 2020
In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic for a discussion about invasive therapy for obstruction. We take a deep dive in to "when" to think about getting moving to myectomy or alcohol septal ablation. Dr. Lever also talks about the various treatments for obstruction. Q&A included.
Tuesday Oct 13, 2020
Tuesday Oct 13, 2020
In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks about cardiac imaging in HCM, the history of HCM treatment and diagnosis, the purpose and usefulness of an echocardiogram, contrast echocardiogram, normal values for wall thickness, obstruction, heart murmur, cardiac MRI, and more.
Friday Oct 02, 2020
Friday Oct 02, 2020
In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic about safety concerns with some generic drugs. He advises listeners to stay informed about where medication by checking the label and asking your pharmacist. There are documented cases of quality and purity problems coming from some overseas manufacturing plants.
Wednesday Sep 16, 2020
Wednesday Sep 16, 2020
In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imagining, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks with Lisa about why HCM is so poorly misunderstood. Lisa also reads questions from the live Facebook chat for Dr. Maron to answer. This episode was record on 09/11/2020 and Lisa and Dr. Maron take a few minutes to pay tribute to the lives that were lost in the tragic terrorist attacks on the World Trade Center on 09/11/2001.
Wednesday Sep 16, 2020
Wednesday Sep 16, 2020
In this episode we welcome Julie, HCMA’s new Volunteer Coordinator. Julie and Lisa talk about the programs they have planned for HCMA in the future. They have been friends since early childhood and reflect on the day Lisa was first diagnosed with Hypertrophic Cardiomyopathy. Julie also talks about her son David who is on the Autism spectrum and her experience raising and taking care of him. You will see why Julie is such a great fit for the HCMA community and how she is truly part of the bighearted family!
Thursday Jun 04, 2020
Thursday Jun 04, 2020
Host Lisa Salberg discusses exercise, obstruction and hypertrophy with Dr. Martin Maron from Tufts Medical Center.
Thursday Jun 04, 2020
Thursday Jun 04, 2020
In this episode of Tales from the Heart, host Lisa Salberg discusses genetic testing with Invitae representative Dr. Tom Callis -PhD.
Tuesday Mar 10, 2020
Tuesday Mar 10, 2020
In this episode we discuss risk of sudden cardiac arrest vs. the symptoms of hypertrophic cardiomyopathy(HCM). A common misconception is that absence of symptoms means absence of risk of cardiac arrest. HCM patient Cole Mitchell discusses what it was like for him to receive an implantable defibrillator in his teens. His story clearly illustrates how real the risk factors can be. To read more about HCM risk factors read the 2011 ACCF/AHA Guidelines - section 6.3