Tales from the Heart

Episode 57:Medical Management, Managing Symptoms and Medication Side Effects.

In this episode of "Tales from the Heart", Lisa Salberg and her guest Dr. Harry Lever discuss medical management, managing symptoms and medication side effects.

Episode 56: A Review of REDWOOD HCM OLE with Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics

In this episode of Tales From the Heart, Lisa Salsberg has a discussion with representatives:  Dr. Steve Heitner and Dr. Dan Jacoby from Cytokinetics about REDWOOD HCM OLE. 

Episode 55:Special Edition: Camzios is here!! with Dr Milind Desai

In this special edition episode of Tales from the Heart, host Lisa Salsberg and Dr. Milind Desai of Clevaland discuss the arrival of the new drug Camzyos. Camzyos is the first and only FDA-approved cardiac myosin inhibitor that specifically targets the source of obstructive HCM

Episode 54: Communicating about Genetics/Family History in HCM with Dr. Steve Ommen

In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss  Genetics/Family History in HCM  and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?

Episode 53: The Role of Patient Advocacy for Uncommon Disorders with Dr.Turer

In this episode of Tales from the Heart, Lisa Salsberg and Dr. Turer discuss the role of patient advocacy for uncommon disorders

Episode 52: Arrythmias / Life with Devices Part II with Dr. Harry Lever

In this episode of Tales from the Heart,  host Lisa Salsberg and Dr.  Harry Lever of Cleveland Clinic will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.

Episode 51: Special Edition: Student athlete screening as it relates to COVID and the COVID Vaccine.

In this special edition episode of Tales From the Heart, Lisa Salsberg and Dr. Matthew Martinez discuss student athlete screening as it relates to COVID and the COVID Vaccine. New Jersey Statue C.18A:40-41.6 clearly communicates the role of student-athlete preparticipation physical examinations. The Hypertrophic Cardiomyopathy Association, HCMA, and other organizations in NJ worked to pass updates to this legislation to ensure all student-athletes are protected from all forms of cardiac complications up to an including sudden cardiac arrest (hypertrophic cardiomyopathy (HCM) it the most common cause of SCA in the young athletes). The assessment of cardiac arrest risk is a complex area covered in the required state-based training module for all practitioners performing both sports physicals and ‘well-child” exams. It is important to ensure that school boards, school medical oversight providers, coaches, students, and parents are being informed by evidence-based scientifically proven theories and approaches to surveillance.

Episode 50: Discussing Timely HCM Topics with Dr. Alex de Feria

Dr. Alex De Feria joins host Lisa Salsberg for this episode of Tales from the Heart to discuss timely HCM topics. Being diagnosed with HCM, Dr. Feria  brings a unique point of view on HCM from both a doctor's and patients perspective.

Episode 49: Arrythmias / Life with Devices Part I with Dr. Martin Maron

The HCMA theme for the month of  March is:  "Arrythmias / Life with Devices".  In this episode of Tales from the heart, host Lisa Salsberg and Dr. Maron will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.

Episode 48: Reflections of February 2022 HCM Awareness Month

In this episode of Tales from the Heart, host Lisa Salsberg reflects on  HCM Heart Month this past February and why it was important.