Tales from the Heart

Episode 47: Why is HCM Awareness so important? - with Dr. Steve Ommen of Mayo Clinic

In this episode of Tales from the Heart, host Lisa Salsberg wraps up Heart Month with a discussion about why HCM Awareness is so important with Dr. Steve Ommen of Mayo Clinic. Dr Steve Ommen leads the HCM program and talk about HCM history and a vision of the future in HCM.

 

ACC Survey Link: Survey link:

https://www.surveys.acc.org/se/0B87B7442D11B879

Imbria Trial: https://www.surveymonkey.com/r/hcmawareness

Celltrion: https://www.surveymonkey.com/r/hcmacelltrion

Please share this story to bring awareness to Heart Month! To learn more about hypertrophic cardiomyopathy (HCM), go to https://www.4hcm.org.#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM

Episode 46: Discussing the HCM act with Billur Dowse: HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee

In this episode of Tales from the Heart, host Lisa Salsberg talks to Heart Billur Dowse, HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee about the role of the committee and the HCM Act. 

Episode 45: Heart Month Discussion: How do we find more HCM families? Why is it important? Why does expert care matter?-with Dr. Martin Maron

In this episode of Tales from the Heart, Lisa and Dr. Maron discuss delay to diagnosis, the right time to go to a COE, the importance of expert care, family screening, how to find HCM families, and more. 
#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM 

 

 

 

Episode 44: Heart Month and Health Equity with Celina Gorre, CEO of WomanHeart

In this episode of Tales from the Heart WomanHeart CEO Celina Gorre, joins HCMA CEO Lisa Salberg for a discussion about Heart Month and health equity for the HCM community.

Episode 43: Planning your HCM Year with Dr. Harry Lever

In this episode of Tales From the Heart,  Lisa Salberg, CEO of the HCMA and Dr. Harry Lever of the Cleveland Clinic gives tips on how to plan your HCM year. 

Episode 42: Mike Papale: HCM Warrior, Cardiac Arrest Survivor, Author and Advocate.

In this episode of Tales from the Heart, Lisa talks to Mike Papale: HCM warrior,  cardiac arrest survivor, author, and advocate. Mike talks about his book "A Big Heart: A Memoir" which tells the story of his diagnosis with HCM and how it's shaped his life. 

Episode 41: What will 2022 bring for the HCM community?-with Dr. Martin Maron

In this episode of Tales from the Heart, Lisa Salberg and Dr. Martin Maron discuss what is coming to the HCM community in 2022, how to plan as a patient for the new year, and the exciting new programs we are starting. 

Bonus: HCMA International Part I: The Sweden Chapter

As the HCMA grows we know how important it is for patients to receive information in a language they are comfortable speaking. Additionally, we know that every country has a unique healthcare system. This is why we have launched HCMA International to help bridge gaps in knowledge, understanding, and access to care for patients around the world. In this bonus episode of Tales From the Heart, we talk to our Sweden chapter.

Episode 40: Health Equity in HCM: Diving into the African American/Black HCM experience.

This episode of Tales from the Heart focuses on health equity and the HCM experience within the Black/African American community. It was originally recorded on Facebook live on December 9, 2021

Episode 39: Real life with HCM and the connection between our hearts and our emotional wellbeing with Gwen Mayes MMSc, JD HCM patient.

In this episode of Tales from the heart Lisa Salberg, HCMA Founder and CEO, and Gwen Mayes MMSc, JD HCM patient discuss real-life with HCM and the connection between our hearts and our emotional wellbeing.